My body is getting weaker and my muscles twitch, which feels like I have twinkling lights inside my whole body. As I learn how to live with this disease, these are some of the things I’ve realized:
- I can’t run but I can still walk.
- My speech is slow and I slur my words but I have patient people to listen to me.
- My arms are weak but I can still hug.
- I can no longer drive but I have great chauffeurs.
- I can’t ride a bike but I love to see others get out and do it.
- My handwriting is getting shaky but I can still type.
- My right hand is starting to curl but I can still hold hands.
- I can’t dry my hair but I have Mark to help me.
- I can’t shave my legs perfectly anymore but I can still shave them if I sit down in the shower.
- I can’t cook but I didn’t like to anyway.
- I can’t clean the bathroom very well but I can still do laundry which is my favorite household chore to do.
- I still cry a lot but I am getting stronger mentally, some days.
Every time I get really sad or feel sorry for myself, I cry for a little while, but it doesn’t take me long to find another reason to smile.