Writing Makes Me Feel Normal

Ship

It’s great that Corey suggested I start writing because it is about the only thing I can do on my own now. When I write it makes me feel as if my illness is gone. When I write I enter a different world. The world I enter is half dream and half nightmare. It’s like I’m having a dream about a girl named Rosemary who had a happy childhood, married a wonderful man named Mark and together they had four beautiful children and lived happily until Rosemary was diagnosed with an  incurable disease. In my dream my family and friends are running around trying to find the right path to take to make everything seem normal again. And then I wake up and I still have ALS.

I know I won’t be waking up free of ALS. And I may not be as independent as I once was, but I am still able to make decisions and I can communicate. I may not be full of life like I once was, but my life is full of love, more than I thought was possible. I still wake up excited about my day most days. The best part of this illness is that I have been gifted with time. Some mornings I lay in bed waiting for Mark to wake up so I can get to my computer to write down the story I just wrote in my head while laying next to him. If I didn’t have ALS I never would have written a story because I was always too busy to write.

Because of writing I have experienced so many new and wonderful things about myself and other people. I love opening up my email in the morning, especially when I receive an email from someone I have never met or someone I haven’t talked to in years. It feels like I’ve received a present. I’ve push myself  mentally and emotionally further than I ever thought possible because of all of your encouragement. Thank you for being on my dream team. Maybe we all have the ability to turn our nightmares into dreams with a little encouragement. Wouldn’t that be a wonderful thought.

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11 thoughts on “Writing Makes Me Feel Normal

  1. I look forward to reading your posts everyday It is a true inspiration. I have issues and have found that life is precious and enjoy the moments you have with loved ones. I am so blessed to know you and be able to follow your beautiful writings. Love, Theresa

  2. Everyday I open your blog with such anticipation! It makes all of my daily issues seem not only trivial, but not worth complaining about (which I am famous for!!) Thank you! You and your family are always in my thoughts and heart!

  3. I want to say you are one amazing woman… I have been praying for you and before I go on, I want to say I have been following your posts, I think for a month now, when I first seen it on Aunt Patti’s FB page. I am Uncle Luz’ niece, Ramona (Mona’s) daughter, I remember seeing you and Mark a few times, one time when Uncle Luz was in the hospital for his prostate and I know previously before that and also after. Like I said I have been praying for you and I just want to say thank you for sharing your life with us… You truly are a strong, couragous woman. I will continue to keep you and your family in my daily prayers.

  4. I read your beautiful words and it inspires me to be the best possible person I can be. I think everyone has heard the words “if everyone threw their problems in a pile, you would scramble to get your own”…….how true is that. Hope your holidays are filled with fun and family. Lots of love and hugs to you.

  5. Dear Rosemary,
    I have been following your posts since my sister sent me the link, as a matter of fact I have it sent to my work email so I can read it as soon as you send it. I don’t know if you remember me, but I am Annette’s (Patrick’s wife’s) oldest sister. You inspire me and break my heart with your posts. Both of our parents have passed away, but we still have a magnetic pull back to Muskegon, back to that beautiful lake, back to those sandy beaches that hold so many memories of growing up.
    A more perfect extended family (yours) does not exist, as far as I know. I have only met you a handful of times on our summer visits, but you and Mark let our kids borrow some bikes one year and our kids had the joy of riding up and down Pere Marquette Park, a blessing for them and me, as they enjoyed the goodness of those shores. And then June of 2012, my sisters and I came home on a whirlwind trip, Judy and Gord enveloping us in their goodness and treating us like their own family allowing us to stay with them, so we could attend our Aunt and Uncle’s 50th Anniversary. We met up with you and walked to your condo on Muskegon Lake and once again, I was struck with your kindness as you offered us a cold drink and we laughed and talked.
    So thank you, Rosemary, for reminding us again that we need to live for today and let go of past hurts and petty arguments and get on with the important things in life. I pray for your strength and peace…

    Lisa Boghozian MSN, RN, CCRN
    Clinical Informatics Coordinator
    Evidenced Based Care
    Mountain States Health Alliance
    Johnson City, TN
    423-302-6307 Office
    423-946-4162 Cell
    423-979-6146 Fax

  6. Your writing inspires many, including me. And writing lasts forever. It will be part of your legacy. Please continue. this way others get to follow your journey and in a way experience it with you. You continue to be in our daily prayers. God bless you and your family.

  7. OK NOW I FEEL I CAN SAY IT…..YOU HAVE BEEN GIVEN A GIFT…..YOU HAVE THE CHANCE TO TELL ALL THOSE YOU LOVE AND TOUCH OTHERS YOU DO NOT KNOW YOUR PROFOUND THOUGHTS. THIS IS SOMETHING OTHERS THAT ARE TAKEN FROM US DO NOT HAVE A CHANCE TO DO. NOW SAYING THAT, WHAT IS HAPPENING TO YOU IS UNFAIR AND YOU ARE TRULY AMAZING.

  8. I for one am so glad and thankful that you write!!! The way that you put your thoughts into words is so BEAUTIFUL to read. I look forward to reading your blog daily…….I know that you hear this a lot but it is so true….but you are an inspiration to me…Your honesty about your disease is really something to be admired. I for one find that you are one tough Lady who has an inner strength that is AMAZING!!!!! Positive energy continues to come your way along with prayers…….Hugs and love to you Rosemary……..

  9. I especially loved your last sentence. ” maybe we have the ability to turn our nightmares into dreams” Love you special girl… You always have been an inspiration.

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