It’s great that Corey suggested I start writing because it is about the only thing I can do on my own now. When I write it makes me feel as if my illness is gone. When I write I enter a different world. The world I enter is half dream and half nightmare. It’s like I’m having a dream about a girl named Rosemary who had a happy childhood, married a wonderful man named Mark and together they had four beautiful children and lived happily until Rosemary was diagnosed with an incurable disease. In my dream my family and friends are running around trying to find the right path to take to make everything seem normal again. And then I wake up and I still have ALS.
I know I won’t be waking up free of ALS. And I may not be as independent as I once was, but I am still able to make decisions and I can communicate. I may not be full of life like I once was, but my life is full of love, more than I thought was possible. I still wake up excited about my day most days. The best part of this illness is that I have been gifted with time. Some mornings I lay in bed waiting for Mark to wake up so I can get to my computer to write down the story I just wrote in my head while laying next to him. If I didn’t have ALS I never would have written a story because I was always too busy to write.
Because of writing I have experienced so many new and wonderful things about myself and other people. I love opening up my email in the morning, especially when I receive an email from someone I have never met or someone I haven’t talked to in years. It feels like I’ve received a present. I’ve push myself mentally and emotionally further than I ever thought possible because of all of your encouragement. Thank you for being on my dream team. Maybe we all have the ability to turn our nightmares into dreams with a little encouragement. Wouldn’t that be a wonderful thought.