ALS Clinic Day


On Monday Mark, Kelly and I spent six hours at St. Mary’s Hospital in the ALS Clinic. During the visit we were put into the V.I.P. room with a comfy reclining chair.

The reality of this disease is getting brutally evident especially during the last few clinic visits as we hear words like feeding tube, motorized wheelchair, cough assist machines and breathing machines. It sounds awful and I’m sure at times it will be but so far we are adjusting to the changes and we just need to keep trusting.

During these visits we laugh a lot and sometimes cry, but mostly we laugh. Yesterday Kelly came back from the bathroom and said, “You’ve got to check out the heated toilet seat in the bathroom. It’s awesome.” A little later Mark took me to the bathroom and not only was the toilet seat heated but with a push of a button this toilet washes and dries your butt.

After we finished in the bathroom Mark and I went back to our V.I.P. room where Kelly was waiting and she asked what we thought of the toilet and Mark said, “It’s hard to believe I could some day be replaced by a toilet.”

Seriously, I am not making this stuff up.


11 thoughts on “ALS Clinic Day

  1. I told you they made those toilets. I do not know the cost of such equipment. But, the thought that came to my mind when being introduced to them was” oh by golly, my grand kids would run those seats until they exploded!”

  2. I’ve been reading your posts daily for a long time and in a nutshell… You are the definition of PERFECTION…. Thank You.

  3. I have been reading your posts daily and you are the only blogger I have ever followed. In a nutshell… You are PERFECTION and thank you.

  4. Rosemary, The last 3 weeks have been weeks of many emotions for me as i adjust to my father being diagnosed “terminal”. I have a new respect for you as I take care of him each day. It is an honor, each day, as I consider the many ways I can love (verb) him. What a gift. I know Mark and the rest of your family feels exactly like I do as I travel this journey with him. What an honor! What a gift to have this lovely Rosemary to care for and love in such a tangible way. By the way, I’m in love with all of them and YOU! Prayers, hugs and wishes for soft places to fall when you need it! For all of you!

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