It’s been one week since I had surgery to place a feeding tube into my stomach. I thought it was going to be an easy surgery but it has kicked my butt. The doctor and my friend Rose said the procedure was flawless but shortly after surgery when I got home I was experiencing a lot of pain. I don’t know if it was due to the muscle spasms that are a symptom of ALS or not but I was having severe pain at the site of the tube. It felt like contractions.
We called Rose to see if this pain was normal. She offered to come over and check me out. By the time she got to our house she had already talked to Doctor Fox and he suggested I head back to the emergency room for a CT scan to make sure there were no internal problems. Rose stayed with us until we got the CT results. The scan showed no internal issues and I returned home. The spasms started to decrease, maybe due to the morphine that I was given in the emergency room. It was welcome relief.
After a week of sleeping on the couch and Mark sleeping in a lazy boy nearby, I feel like I am almost pain free. Now I am hoping that I can regain some of the strength that I seem to have lost since the surgery. It feels good to laugh again without the sharp pain in my belly.
As far as the feedings go it’s really easy for all of us. Instead of taking an hour to feed me, a meal in my feeding only takes 10 to 15 minutes and saves me the exhaustion of having to chew and the struggle to swallow. All of my medications can go in at the same time. I have managed to eat peaches, cheese cake, soup and popcorn the old way just so that I could taste them.
As we continue on this ALS journey the feeding tube will help to ensure that I get enough nourishment in a more efficient way.