I absolutely hate this fucking disease! Today I’m speaking for myself and maybe some other people that have this dreadful disease. Today my Rosemary-colored glasses are nowhere to be found.
This disease sucks the life right out of our bodies at a very slow pace and only the tough or the lucky ones weather the storm, but only temporarily. It strips us of the use of our arms, legs and neck muscles and then, as if that’s not enough, it takes our voices and our ability to swallow away.
Ironically, ALS doesn’t mess with our minds so we are fully aware of everything that’s happening to us. But then again being fully aware can be one of my worst enemies so I try to calm it with my own problem-solving tactics and most of the time they work but today they aren’t.
Stay tuned for tomorrow because I should have a much happier post because I am one of the lucky ones.