I haven’t written much lately because I’m having a difficult time writing anything with substance because I don’t want to complain and sound like Mrs. Whiner. But if I stop writing now I’ll feel like I haven’t finished my story. If I give only my positive thoughts then I’m not giving you the true picture of living with ALS. I feel compelled to describe what is happening to my weakening body with the hope that someday my words may be helpful to others that have ALS but no longer have a voice or a Tobii machine to talk for them. I feel the need to describe what is happening to my body in the hopes that a caregiver will find something helpful for their loved one. With that being said I’ve decided to give you a more detailed glimpse into my physical world starting tomorrow. I will try my best to describe how powerful this disease is in taking over almost every muscle in my body but leaving my mind painfully aware of what is going on around me. I want to close by saying that this disease wins sometimes but love and a good sense of humor win most of the time and I’m grateful for that.