When Mark and I enter the bathroom my disabilities come alive because I am leaving the security of my wheelchair and trusting Mark to assist me with my duties and get me back to my chair safely.
When Mark starts the transfer to the toilet he bends my upper body forward to help me out of my wheelchair. Because my neck muscles are so weak my heavy head falls forward almost hitting my chest. Lately my bottom jaw has been moving forward in front of my top jaw causing my bottom teeth to move in front of my top teeth. While on the toilet my head is so heavy it stays pinned to my chest the whole time causing my lower jaw to stay in front of my upper jaw. At times I thought that I was going to break my teeth so Mark suggested we put my neck brace on before transferring me from my chair to the toilet and my jaw problem was solved.
Another problem I have while on the toilet is that I can’t talk because my upper and lower jaws are clenched together and I can’t raise my head to talk so Mark and I have worked out some body language to communicate. When I am finished with my business I start rocking my upper body back and forth and he knows I’m finished. If I need to talk to him I groan and he knows I need to say something. He then raises my head and holds it up so I can talk. This may seem crazy but we have to do everything we can to communicate even if he has to hold my head up while I’m on the toilet.
Now that is what I call love.